Talking things over - that helps a bit
Beats wallowing in the bottomless pit
It gets thoughts expressed & feelings known
Also good to know that you're not alone
The world is enormous but to me it's pocket sized
Think that maybe I'm being chastised...
For something I've said or done within my lifetime
Up the endless hills, I forever do climb
Thought it was your own doing, don't you make your own life?
If that's the case, why are these dark times so rife?
Communication, if effective makes a dramatic impact
It allows you to feel like your case is backed
I know that sounds strange in a way - having your feelings endorsed
But when you have a good confidante they see life from your view, of course
I'm so lucky to have many people who in which I can confide
Hopefully that's wonderful mother nature on my side?

Tuesday, 13 October 2009
Uphill Struggle
Labels:
CFS,
Chronic Fatigue,
Chronic Fatigue Syndrome,
Communication,
M.E.,
ME,
Pain,
Poem,
Poetry
Friday, 9 October 2009
The lackos of Bloggings!
Have been extra ill lately but have some nice poems & cake making pics to upload this wkend. Hope someone will find of interest?
Night to all the night owls //*_*\\
Night to all the night owls //*_*\\
Sunday, 27 September 2009
Lost my Nan recently...
I lost my nan recently & camped out at the hospital for a fair amount of time. She was a fighter but looked so fragile at the same time. I hope that she was comfortable in the last days. This is part of what went through my head.
Where are you Nan, where have you gone?
I wish there was a pedestal to put you upon!
You're so wonderful & there's no doubt
That you could keep fighting & knock Tyson out!
Where on earth do you find all that power
To stand out like the gardens prettiest flower?
You're doing my head in. That is so true
Are you happy, sad, peaceful or blue?
You look like an angel being shone down upon
I can see the wonderful halo you have on!
I pray to god that I have done right by you
Maybe one day you'll give me a clue?
As you are laying there in your bed
(After we played Jenga with your head)!
May your mind be full of wonderful things
Like Kevin & your bond with him
Confirmed by that gorgeous wedding ring!
I love you Nan & I hope pray
That our spirits will be entwined forever & a day x
Where are you Nan, where have you gone?
I wish there was a pedestal to put you upon!
You're so wonderful & there's no doubt
That you could keep fighting & knock Tyson out!
Where on earth do you find all that power
To stand out like the gardens prettiest flower?
You're doing my head in. That is so true
Are you happy, sad, peaceful or blue?
You look like an angel being shone down upon
I can see the wonderful halo you have on!
I pray to god that I have done right by you
Maybe one day you'll give me a clue?
As you are laying there in your bed
(After we played Jenga with your head)!
May your mind be full of wonderful things
Like Kevin & your bond with him
Confirmed by that gorgeous wedding ring!
I love you Nan & I hope pray
That our spirits will be entwined forever & a day x
Labels:
Bereavement,
CFS,
Chronic Fatigue,
Chronic Fatigue Syndrome,
Death,
Life,
Loss,
M.E.,
ME,
Pain,
Poem,
Poetry
Friday, 25 September 2009
Bad Day
ME - what a name, can't spell it & how do u say it again?
Have heard it spoken out loud a fair few times
Just it's proper name takes up a fair few lines
Stuck in bed, completely unable to move
Everything going on around me - feel like a shoe stuck to a horse's hoof
The shoe can't move by it's own accord
Stuck there pounding the ground or crossing a ford
Think maybe if u looked, the horse would be found running around in my body, trying to get outside from in
Whilst beating me black & blue, like a battered bag from the bin
The seconds, the minutes, the hours, the days
Most people remember them in very many ways
I don't remember them - one moulds seamlessly into another
It's sad, but at 33 I still have times when I just want my mother!
Don't know what part of life is real or is dreamt
If I had a ml of energy, how was it spent?
It feels degrading - relying on other bodies just so I can go 4 a wee
I'd love to do it alone but my body & mind won't let it be
Laying or sitting up only with assistance from my bed
I can't even lift my own sodding head
I literally live my life thru minutes
Not hours or days like the average man, innit?
Pain pulsing thru me, pumping thru every vein
Don't know how my body keeps up with the strain?
Have heard it spoken out loud a fair few times
Just it's proper name takes up a fair few lines
Stuck in bed, completely unable to move
Everything going on around me - feel like a shoe stuck to a horse's hoof
The shoe can't move by it's own accord
Stuck there pounding the ground or crossing a ford
Think maybe if u looked, the horse would be found running around in my body, trying to get outside from in
Whilst beating me black & blue, like a battered bag from the bin
The seconds, the minutes, the hours, the days
Most people remember them in very many ways
I don't remember them - one moulds seamlessly into another
It's sad, but at 33 I still have times when I just want my mother!
Don't know what part of life is real or is dreamt
If I had a ml of energy, how was it spent?
It feels degrading - relying on other bodies just so I can go 4 a wee
I'd love to do it alone but my body & mind won't let it be
Laying or sitting up only with assistance from my bed
I can't even lift my own sodding head
I literally live my life thru minutes
Not hours or days like the average man, innit?
Pain pulsing thru me, pumping thru every vein
Don't know how my body keeps up with the strain?
Labels:
CFS,
Chronic Fatigue,
Chronic Fatigue Syndrome,
M.E.,
ME,
Pain,
Poem,
Poetry
Wednesday, 23 September 2009
DISCONNECTED
Feel secluded. Cut right off
Deserted. Feeling extremely rough
Forever laying in my bed, looking outside
How I want to go out, like the receding tide
In a bubble. That's how it feels
The whole world spinning round me like a wheel
Sitting in this bubble, everythings distorted
Any plans that I had have been effortlessly thwarted
I can hear the goings on around me
But am so disconnected. Won't someone just ground me?
Everything in life has become so contorted
My happy thoughts seem to have been exported...
To another place for now anyway
And maybe it's just better that way?
Interaction - what does that mean?
The very thought of it makes my mind scream
I'd love to be there. Just in the room
Hopefully this bad patch will wear off soon
Labels:
CFS,
Chronic Fatigue,
Chronic Fatigue Syndrome,
M.E.,
ME,
Pain,
Poem,
Poetry
Friday, 18 September 2009
The Girlz
Had such a lovely day. Met up with all my girlz - some I see regularly & a couple not met up with for 20 years!!! I don't feel old at all!
Off to bedfordshire now for some shut eye. Be in touch with you girlz soon. Thanks for the lunch date.
ZZZzzzzzzzzzzzzzzzzzzzz
Chronic Fatigue Knife
The pain, the headache, the ringing in my ears
It hurts more when I cry but can't hold back the tears
Feels like am losing years of my life, all for being cut with the Chronic Fatigue knife
Name any part of me & I'll tell u it's sore
The ache & the pain is oozing from each & every pore
Laying in a darkened room with no light, no scents, no noise
Stuck in position with pillows & bed lift. I have no poise
Rely on carer for every minute shift, can do nothing myself - am so miffed
Just the rise & fall when I breath
Feels like the same pain when pulling teeth
Every joint & every bone
Why can't the physical suffering leave me alone?
Then I'd still be left with the mass mentality block
That boat is definitely sat in dry dock
Not going anywhere - doesn't want 2 sail
Within my mind, it's firmly impaled
My brain hurts processing the tiniest thought
Therefore I just lay & try to keep my mind at level nought
Boring; fed up, angry, sad
What have I done in life that's so bad?
Ok, that may sound like I'm down but it couldn't be any further from the truth. I am very lucky to have a wonderful partner & son who keep me going!
Just felt like this was my little insight for some people who try to understand Chronic Fatigue but don't see it. The verse above sums up my day to day life but I have good times too. I am very positive about life.
Emmskibeatz x x
Labels:
CFS,
Chronic Fatigue,
Chronic Fatigue Syndrome,
M.E.,
ME,
Pain,
Poem,
Poetry
Thursday, 17 September 2009
Am new to this! Have patience please?
Just trying this out for now! Postings of the bloggings later...
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