The noises you're making are driving me insane.
Also, why open the curtains - it's frying my brain
The agony just from sight & sound
Head spinning on the spot - round & round
Don't come near me either. I can't stand the touch
All these heightened senses are really too much
Put off eating & drinking yet again
The smell & taste make me sick - think I'll abstain
- Posted using BlogPress from my iPad
Tuesday 10 April 2012
Thursday 9 June 2011
Jason Rice - Rest In Peace
Life is just plain cruel
Taking you like that
It seems only a few years ago
In classrooms, we were sat
You were always the life & soul
The light in the room
Your confidence was inspiring
So why so soon?
You worked so hard over the years
To build a happy life
You seemed contented & at ease
With your gorgeous wife
You were an inspiration to us all
I can remember the day we met
You told me you had a hole in your heart
You didn't bat an eyelid, didn't fret
We weren't classed as close friends
But that was just everyday life
We'd always say hi, if we bumped into each other though
You seemed so laid back, no troubles or strife
I always knew your good news
Through Nick's in-laws
It was so good to hear how things had moved on
For you had opened many doors
Jason, life won't be the same without you
Your family & friends left behind
Your lovely wife & baby
A love between you will forever be entwined
Your baby shall grow up with pictures
Of you, the wonderful Dad
The memories that would have been
Passing by. So terribly sad
Your life was so special to many people
Who will ensure your memory lives on
I know I'll never forget you
The cheeky (not so) little one
Up there looking down
I hope that you can see sunshine through the clouds
For when you are finally laid to rest
To show respect & love, there will be crowds
Rest In Peace
Taking you like that
It seems only a few years ago
In classrooms, we were sat
You were always the life & soul
The light in the room
Your confidence was inspiring
So why so soon?
You worked so hard over the years
To build a happy life
You seemed contented & at ease
With your gorgeous wife
You were an inspiration to us all
I can remember the day we met
You told me you had a hole in your heart
You didn't bat an eyelid, didn't fret
We weren't classed as close friends
But that was just everyday life
We'd always say hi, if we bumped into each other though
You seemed so laid back, no troubles or strife
I always knew your good news
Through Nick's in-laws
It was so good to hear how things had moved on
For you had opened many doors
Jason, life won't be the same without you
Your family & friends left behind
Your lovely wife & baby
A love between you will forever be entwined
Your baby shall grow up with pictures
Of you, the wonderful Dad
The memories that would have been
Passing by. So terribly sad
Your life was so special to many people
Who will ensure your memory lives on
I know I'll never forget you
The cheeky (not so) little one
Up there looking down
I hope that you can see sunshine through the clouds
For when you are finally laid to rest
To show respect & love, there will be crowds
Rest In Peace
Tuesday 7 June 2011
The Streets - M.E. - Mike Skinner
It's 02:30. I can't sleep. I catch up on Twitter then tap up Google to try & find any M.E./CFS (Chronic Fatigue Syndrome) blogs. Personal ones, to which I can subscribe or follow.
The first link I find however, is to a BBC blog that states Mike Skinner of The Streets is a fellow sufferer of M.E./CFS and has written a song on his last album called 'Trying to Kill M.E.' He openly admits on the BBC blog that his illness isn't severe but it's good that people in the spotlight can write about this sort of thing & get a message across.
Immediately, I tapped into my iTunes & found the tune that had been sitting there without me noticing. Bad girl, slaps wrist! It's readily available for download via iTunes, either as an album or just the single 'Trying to Kill M.E. if you fancy it.
I was in tears within seconds of playing the track. The lyrics are so real & true to feeling. I love the way that Mike Skinner is also saying that he won't let it beat his creativity.
I then searched for the lyrics online, which upset me further due to reading his struggle. Then I noticed something striking... that Mike Skinner has used a line that I have used in my poetry before.., 'For this Chronic Fatigue, there's no tonic it seems'.
Two people unknown to each other at all. The only thing that they have in common is being M.E./CFS sufferers.
These two people used the same line, 'For this Chronic fatigue, there's no tonic it seems'.
This makes me wonder? How many other sufferers, or carer's, feel this way?
Maybe not everyone is lyrical or a poet (of sorts) but lots of people must be thinking along the same lines, surely?!
Even if you just change the words slightly, I bet each & every sufferer, their friends, families or carers have had the thought:
'For this Chronic Fatigue, I wish there were a cure'
Or
'For this Chronic Fatigue, there's no let up it seems'?
I could come up with lots of alternatives but you get my point now.
I was so shocked to find out about Mike Skinner & genuinely feel for the guy. I know how hard it is living with this illness but he is proof that you can still live life whilst having M.E./CFS
If you like The Streets (I love them myself) then I urge you to go & buy the album Computers and Blues. It is not only an amazing album but their fifth & final album ever...
I wish him luck in whatever he chooses to do next. I'm sure Mike Skinner can roll with anything he puts his hands to!
Link to BBC Blog about Mike Skinner & M.E./CFS: http://bbc.in/myh2fO
The first link I find however, is to a BBC blog that states Mike Skinner of The Streets is a fellow sufferer of M.E./CFS and has written a song on his last album called 'Trying to Kill M.E.' He openly admits on the BBC blog that his illness isn't severe but it's good that people in the spotlight can write about this sort of thing & get a message across.
Immediately, I tapped into my iTunes & found the tune that had been sitting there without me noticing. Bad girl, slaps wrist! It's readily available for download via iTunes, either as an album or just the single 'Trying to Kill M.E. if you fancy it.
I was in tears within seconds of playing the track. The lyrics are so real & true to feeling. I love the way that Mike Skinner is also saying that he won't let it beat his creativity.
I then searched for the lyrics online, which upset me further due to reading his struggle. Then I noticed something striking... that Mike Skinner has used a line that I have used in my poetry before.., 'For this Chronic Fatigue, there's no tonic it seems'.
Two people unknown to each other at all. The only thing that they have in common is being M.E./CFS sufferers.
These two people used the same line, 'For this Chronic fatigue, there's no tonic it seems'.
This makes me wonder? How many other sufferers, or carer's, feel this way?
Maybe not everyone is lyrical or a poet (of sorts) but lots of people must be thinking along the same lines, surely?!
Even if you just change the words slightly, I bet each & every sufferer, their friends, families or carers have had the thought:
'For this Chronic Fatigue, I wish there were a cure'
Or
'For this Chronic Fatigue, there's no let up it seems'?
I could come up with lots of alternatives but you get my point now.
I was so shocked to find out about Mike Skinner & genuinely feel for the guy. I know how hard it is living with this illness but he is proof that you can still live life whilst having M.E./CFS
If you like The Streets (I love them myself) then I urge you to go & buy the album Computers and Blues. It is not only an amazing album but their fifth & final album ever...
I wish him luck in whatever he chooses to do next. I'm sure Mike Skinner can roll with anything he puts his hands to!
Link to BBC Blog about Mike Skinner & M.E./CFS: http://bbc.in/myh2fO
Saturday 4 June 2011
Champneys Facial Wipes
Ok... I am new to this reviewing of products. Here goes nothing!
I have stumbled across possibly the best facial wipes to remove make up, EVER! For christmas, I was lucky enough to receive this gorgeous Champneys Weekend Bag
The bag contained all the usual items that one would expect - bath milk, shower gel etc. It also contained these amazing All-In-One Skin Smoothing Facial Wipes.
Yes, Christmas was forever ago now but I don't wear heavy make up much, so waited until I had the opportunity for a glammed up girls night out to use this wonderful product.
I had really heavy grey/black eye make up with plenty of eyeliner & waterproof mascara plus all the usual foundation base.
I arrived home, bleary eyed (obviously from wearing contact lenses all night) ready to put the wipes to the ultimate test..
... They were awesome! I only needed to gently wipe my face & delicate eye area for my make up to completely disappear. It only took a minute or two too. I was astounded! The wipes not only swept away all traces of make up but also left my face feeling lovely & clean, ready for my night time moisturiser.
I cannot recommend this product enough! I did toy with the idea of a before & after photo but wisely, I think, decided against this. Pure vanity is the reason - I could not stand the thought of a close up of my face on the web! Shallow, yes. Ashamed, no ;)
Anyway, I've carried out a little bit of research & these babies are only £5 from various high street stores. This price is average but definitely below the hefty price tag for the higher end products that I have paid a fortune for in the past.
I use these wipes on days when I'm feeling lazy & can't be bothered with the whole cleanse, tone, moisturise routine & they keep my skin happy very happy indeed.
In future, I shall be sticking to these!
I have stumbled across possibly the best facial wipes to remove make up, EVER! For christmas, I was lucky enough to receive this gorgeous Champneys Weekend Bag
The bag contained all the usual items that one would expect - bath milk, shower gel etc. It also contained these amazing All-In-One Skin Smoothing Facial Wipes.
Yes, Christmas was forever ago now but I don't wear heavy make up much, so waited until I had the opportunity for a glammed up girls night out to use this wonderful product.
I had really heavy grey/black eye make up with plenty of eyeliner & waterproof mascara plus all the usual foundation base.
I arrived home, bleary eyed (obviously from wearing contact lenses all night) ready to put the wipes to the ultimate test..
... They were awesome! I only needed to gently wipe my face & delicate eye area for my make up to completely disappear. It only took a minute or two too. I was astounded! The wipes not only swept away all traces of make up but also left my face feeling lovely & clean, ready for my night time moisturiser.
I cannot recommend this product enough! I did toy with the idea of a before & after photo but wisely, I think, decided against this. Pure vanity is the reason - I could not stand the thought of a close up of my face on the web! Shallow, yes. Ashamed, no ;)
Anyway, I've carried out a little bit of research & these babies are only £5 from various high street stores. This price is average but definitely below the hefty price tag for the higher end products that I have paid a fortune for in the past.
I use these wipes on days when I'm feeling lazy & can't be bothered with the whole cleanse, tone, moisturise routine & they keep my skin happy very happy indeed.
In future, I shall be sticking to these!
Sunday 29 May 2011
Chronic Fatigue - My Daily Grind...
If you've read my brief Bio, I have mentioned that I have M.E. or Chronic Fatigue Syndrome (CFS) as it is referred to more consistently now.
Over the years & a lot more recently, friends have questioned what is it?
For some of those that I see in person, it is still very hard to offer an explanation & it is also extremely difficult for them to see how it affects me. When I see my friends (which is not a lot - maybe once every 6-8 weeks at most), some of them just don't get it. I totally understand this, as to look at me I just seem tired or run down at the most whether in my wheelchair, clutching a walking stick or not.
If I apply some make-up, it looks as if there's nothing wrong at all - thank you so much to the wonderful companies for inventing great make-up!!! I'd be lost without it!!!!
I just thought it may interest some people, & offer a little insight into my world, if I wrote a short run through of my normal day to those who often ask about my condition. This is as much for my friends that I see as it is for those wonderful people I have met via the wonderful virtual world wide web. You have all inspired me to write this...
07:30
Alarm goes off - take tablets; one for mood swings, two for time release pain killing,two for instant pain relief & one other stronger pain killer. Am unable to move
10:30
My carer visits, wakes me & makes sure I am looked after
11:30
Wake up in pain - take two pain killers. Am unable to move
12:30
My son comes in from school, wakes me up (if he can), tells me what he's done at school then gives me lots of kisses & cuddles. Am unable to move
12:45
I fall back to sleep
14:30
Wake up, am unable to move but I'm generally awake at this time
15:30
Take two pain killers & one stronger for instant relief. By this time I can move a little but still need a lot of help
16:15
Spend as much time with my son as possible
17:00
Take first lot of two sleeping tablets
18:30
Take second lot of two sleeping tablets
19:00
Get ready for bed (not that I've been out of it much, if at all)!
19:30
Take two time release pain killers & two instant relief painkillers
21:30
Wake up in pain. Take one instant relief painkiller. Am unable to move
00:00
Wake up, unable to sleep - take third lot of two sleeping tablets. Am unable to move
07:30
Alarm goes off - take tablets; one for mood swings, two for time release pain killing,two for instant pain relief & one other stronger pain killer. Am unable to move
And so it goes on & on.......
Of course, not everyday is the same & there is a lot more to it, like needing assistance to move at all.
I do have days where I wake up a little earlier or am able to get around but those days a very few & far between.
I know it looks bad that I take all of these tablets! However, I lived for years not touching anything except any natural therapy available (at considerable cost) & those years were the absolute worst. At least now, I have a general pattern & when I do get some extra time in a day where I can do more, I am more than happy!
All the doctors ask 'How many good days do you have per week'? My answer is that 'I do not have good & bad days, but good & bad hours in each day'. If I am alert enough to spend an hour or so with my son watching a movie, watching him draw, playing with craft items or reading books etc (if my brain is up to it) - I class these as good hours.
Generally though, I sleep 19 hours a night/day & have an absolute maximum of 3 hours where I am pretty coherent.
I will end this post now as it is very long & has probably bored the pants off you but I will write more about my condition, & how it affects me personally in the future. If, in the meantime you would like to know more about how it feels to have CFS, please do read my previous poems as they sum up an awful lot about it.
I'm off to rest, rest, rest!
Thanks guys & be lucky x
Over the years & a lot more recently, friends have questioned what is it?
For some of those that I see in person, it is still very hard to offer an explanation & it is also extremely difficult for them to see how it affects me. When I see my friends (which is not a lot - maybe once every 6-8 weeks at most), some of them just don't get it. I totally understand this, as to look at me I just seem tired or run down at the most whether in my wheelchair, clutching a walking stick or not.
If I apply some make-up, it looks as if there's nothing wrong at all - thank you so much to the wonderful companies for inventing great make-up!!! I'd be lost without it!!!!
I just thought it may interest some people, & offer a little insight into my world, if I wrote a short run through of my normal day to those who often ask about my condition. This is as much for my friends that I see as it is for those wonderful people I have met via the wonderful virtual world wide web. You have all inspired me to write this...
07:30
Alarm goes off - take tablets; one for mood swings, two for time release pain killing,two for instant pain relief & one other stronger pain killer. Am unable to move
10:30
My carer visits, wakes me & makes sure I am looked after
11:30
Wake up in pain - take two pain killers. Am unable to move
12:30
My son comes in from school, wakes me up (if he can), tells me what he's done at school then gives me lots of kisses & cuddles. Am unable to move
12:45
I fall back to sleep
14:30
Wake up, am unable to move but I'm generally awake at this time
15:30
Take two pain killers & one stronger for instant relief. By this time I can move a little but still need a lot of help
16:15
Spend as much time with my son as possible
17:00
Take first lot of two sleeping tablets
18:30
Take second lot of two sleeping tablets
19:00
Get ready for bed (not that I've been out of it much, if at all)!
19:30
Take two time release pain killers & two instant relief painkillers
21:30
Wake up in pain. Take one instant relief painkiller. Am unable to move
00:00
Wake up, unable to sleep - take third lot of two sleeping tablets. Am unable to move
07:30
Alarm goes off - take tablets; one for mood swings, two for time release pain killing,two for instant pain relief & one other stronger pain killer. Am unable to move
And so it goes on & on.......
Of course, not everyday is the same & there is a lot more to it, like needing assistance to move at all.
I do have days where I wake up a little earlier or am able to get around but those days a very few & far between.
I know it looks bad that I take all of these tablets! However, I lived for years not touching anything except any natural therapy available (at considerable cost) & those years were the absolute worst. At least now, I have a general pattern & when I do get some extra time in a day where I can do more, I am more than happy!
All the doctors ask 'How many good days do you have per week'? My answer is that 'I do not have good & bad days, but good & bad hours in each day'. If I am alert enough to spend an hour or so with my son watching a movie, watching him draw, playing with craft items or reading books etc (if my brain is up to it) - I class these as good hours.
Generally though, I sleep 19 hours a night/day & have an absolute maximum of 3 hours where I am pretty coherent.
I will end this post now as it is very long & has probably bored the pants off you but I will write more about my condition, & how it affects me personally in the future. If, in the meantime you would like to know more about how it feels to have CFS, please do read my previous poems as they sum up an awful lot about it.
I'm off to rest, rest, rest!
Thanks guys & be lucky x
Saturday 23 April 2011
Cupcake Afternoon!
Today, I actually had some time to myself - the little man's sleeping at Nanna's & big man was tinkering in the garage & garden. The silence was blissful! However, today was rare - I had some energy!
Rather than reserving my energy (as I always do), I threw caution to the wind & spent the afternoon baking. I plugged in my iPod, put on some class vibes & rocked in the kitchen.
I have a wonderful mixer (a rather indulgent purchase) that does all the hard work.
Et voila...
Mackintosh Red Velvet Cupcakes (I call these Mackintosh as the swirl reminds me of Charles Rennie designs)
Carrot & Walnut Cupcakes
Rather than reserving my energy (as I always do), I threw caution to the wind & spent the afternoon baking. I plugged in my iPod, put on some class vibes & rocked in the kitchen.
I have a wonderful mixer (a rather indulgent purchase) that does all the hard work.
Et voila...
Sunday 27 February 2011
A New Era... well for me anyway!
Good day to you all!
I have been thinking about blogging properly for a while now & have had quite a few people, including friends, family & wonderful people I have yet to meet in person but have met in cyberspace, trying to encourage me to do so.
Some people say that I should write a lot more about M.E/Chronic Fatigue as they often find it hard to understand (although it's extremely hard to explain what it's all about). This has been the most constant subject of my poetry written in earlier posts on here as it has taken over my life in such a big way.
People have suggested that I write about fashion, make up, beauty, shopping etc as they are things I cannot get enough of! Also hobbies; cake making & sugarcraft, Art, architecture, sewing & my love of all things handmade & organic.
Professionals, including doctors & OT's have suggested that I write about a darker side of Alzheimer's because I have witnessed an altogether different side of the disease that seems to have been completely overlooked.
The list goes on and on!
Anyhow. I think I am going to take the advice & suggestions of all the wonderful people I have come to know & give Blogging a go! I am not making any promises to myself (or anyone else for that matter) that I shall keep it up & my little excerpts will definitely not be published as regular as clockwork! This could be my one & only post for all I know but I say hey-ho, I'll give it a go!!
Here's to Blogging & all the fun & games that may entail!
Subscribe to:
Posts (Atom)